If a crisis occurs in the school or anywhere in public, it can be a very daunting experience for anyone, especially if they are not prepared. But, imagine what it would be like for a student with autism spectrum disorder (ASD). Children with ASD have a difficult time responding to changes or interruptions in their schedules. They not only need structure, repetitiveness and consistent schedules, but they also must have access to the resources and tools to keep them safe.
At The Doug Flutie Jr. Foundation, our mission is to help families live life to the fullest. Through our programs and partnerships, people can access the services they need to lead active lifestyles and build their adult independence. Safety and preparation for a crisis situation is crucial for families to consider. This is why it is part of our core mission.
To give parents peace of mind, or at least help them prepare in case of an emergency, we have supported several safety initiatives including ALEC and SafetyNet Tracking Systems. Through Joey’s Fund, we have funded multiple fences for families who are concerned about the safety of their child but cannot afford to pay for one.
ALEC (Autism and Law Enforcement Education Coalition) is a first responder training program that provides an in-depth understanding of ASD to public safety and law enforcement personnel. We have supported ALEC’s Community Days in the Boston area to spread awareness about this safety program. ALEC’s Community Days allows individuals with ASD and their families to meet and interact with police, firemen and EMS in a non-emergency situation in their community. More information can be found through the Arc of South Norfolk at http://www.arcsouthnorfolk.org/alec-first-responder-training.html
For over five years, we have also partnered with SafetyNet Tracking Systems (formerly LoJack SafetyNet) to provide children with autism GPS tracking bracelets through the Flutie Foundation’s Safe & Secure Program. This service enables public safety agencies to effectively search for and rescue individuals with autism who wander and go missing. SafetyNet not only provides the equipment for local law enforcement but offers a comprehensive training program to first responders. The program allows first responders to become familiar with the communication challenges an individual with autism may have and can adapt their search to rescue and return the individual home safely.
Another great resource to consider is Life Journey Through Autism: A Guide to Safety developed by Organization for Autism Research. It is a comprehensive guide for parents on safety issues and strategies to consider. It includes an Appendix for School Safety and Crisis Planning. You can download the guide for free at: http://www.researchautism.org/resources/reading/index.asp#AGuideToSafety
Although we cannot prevent every tragedy or prepare for all crisis situations, we can better protect this at-risk population by educating ourselves and taking advantage of the growing number of safety resources that are available for individuals with autism.
Lisa Borges is the Executive Director of The Doug Flutie Jr. Foundation for Autism.
The National Autism Association has a lot of great resources and safety products for parents as well as a Safety Teacher Toolkit for educators in need of wandering prevention tools.
The Autism FYI Organization– their mission is to promote a safe environment for the increasing ASD population in their existing communities and is in the process of establishing a national registry for safety.